Our lives were thrown upside down

Epilepsy diagnoses prompt parents to embark on gruelling record for longest journey

uk canada goose A group of parents of canada goose outlet online uk children who received life changing neurosurgery have their sights set on a new world record for the longest recorded canada goose outlet jackets journey by dragon boat to help fund new epilepsy research. uk canada goose

This weekend, the canada goose outlet las vegas parents embarked on their attempt to paddle 600 kilometres on the Murray River, from canada goose factory outlet toronto location Yarrawonga to Swan Hill, in six days.

Canada Goose sale If successful, the canada goose outlet website legit 22 strong crew, made up of people from all over the globe, will hold the Guinness World Record for the longest recorded journey by dragon boat. Canada Goose sale

buy canada goose jacket The campaign started with just Alex Evans and his friend Peter Christen, two fathers whose daughters underwent successful neurosurgery at Melbourne’s Royal Children’s Hospital. buy canada goose jacket

Canada Goose Parka When Mr Evans’ daughter Clementine was just five months old she started canada goose outlet kokemuksia experiencing over 100 seizures canada goose outlet england a day. Canada Goose Parka

Canada Goose Jackets “[The seizures] completely stopped her normal development and regressed a lot of the development that had occurred by that point,” Mr Evans said. Canada Goose Jackets

canada goose clearance “It’s every parents’ worst nightmare. canada goose clearance

“We went through the joy of having a healthy child born. One day all of that changed. Our lives were thrown upside down.”

canada goose coats Clementine was diagnosed with epilepsy and, at just 16 canada goose outlet london uk months old, underwent nine hours of brain surgery which completely halted the seizures. canada goose coats

uk canada goose outlet “Without the operation, she had no prospects. She had no chance to develop normally,” Mr Evans said. http://www.canadagoosejacketoutlett.com uk canada goose outlet

“There is still uncertainty in her outlook, but at least she has an outlook.”

Boating for BrainsClementine’s diagnosis prompted Mr Evans to launch the community run initiative Boating for Brains, aimed at raising money in support of the Royal Children’s Hospital’s neuroimaging canada goose shop uk service.

Other parents who have lived through similar experiences have since joined the campaign.

canada goose uk outlet “Boating for Brains is our way of trying to thank the RCH Neurology team for canada goose outlet vancouver salvaging out daughter’s life,” canada goose outlet reviews Mr Evans said. canada goose uk outlet

canada goose “High quality neuroimaging was key to understanding Clementine’s condition and the incredible procedure undertaken to bring her back to us.” canada goose

Canada Goose Outlet They are well on their way to their $200,000 target, having already raised more than $180,000. Canada Goose Outlet

Canada Goose Online The money will enable the RCH to hire a full time neuroimaging scientist who will be responsible for managing and assessing brain scans of children who are born with or acquire epilepsy. Canada Goose Online

cheap canada goose uk Director of canada goose outlet online the Children’s Epilepsy Program canada goose parka uk at the Royal Children’s Hospital, Simon Harvey, said that by analysing the information contained in these brain scans, doctors will be able to better determine in which canada goose outlet legit part of a child’s brain the seizures are occurring and what parts are functioning normally. cheap canada goose uk

He said this information is not evident in routine brain scans and without treatment these children can develop cognitive impairments with limited prospects of leading normal lives.

canada canada goose outlet goose factory sale “If we canada goose outlet 80 off can see on a scan exactly where a child’s seizures are coming from, or if we can see a lesion that’s causing a child’s seizure, that will make a canada goose outlet germany huge difference to the kinds of treatment we can provide,” Dr Harvey said. canada goose factory sale

“This sort of image processing is done primarily in a research setting, but taking these sorts of skills into the clinical domain is new,” he said.

“It will be the first time somebody is employed in a hospital [clinical role] canada goose outlet ottawa outside of the standard medical imaging and radiology departments.

“Without this funding this would not have happened. It’s extremely difficult in public hospitals to canada goose premium outlet create new positions. It requires efforts like [Mr Evans’] to be the triggers for innovation of this kind.”.